The Autoinflammatory Alliance is a 501 (c)(3) non-profit public charity dedicated to promoting awareness, proper diagnosis and treatment, and improved care for people with autoinflammatory diseases.
To continue increasing awareness about autoinflammatory diseases. For example, There are specific signs and symptoms with CAPS that are present at birth or in early infancy, such as: Characteristic rashes, fevers, abnormal lab findings, and other symptoms. Earlier diagnosis and treatment of these rare syndromes, especially in early childhood, could greatly improve the quality of life for patients.
Act as a united voice worldwide to promote improved collaboration amongst healthcare professionals dealing with autoinflammatory diseases; so that all people suffering from these rare syndromes can have an accurate diagnosis and improved access to the most beneficial care and treatment available.
To serve as a resource and advocate for individuals, families, and friends that are dealing with autoinflammatory diseases.
Encourage medical and pharmaceutical groups to continue researching treatments for autoinflammatory diseases. Increase collaboration on projects and awareness efforts with other organizations that deal with autoinflammatory diseases.
We are also interested in working with organizations that are helping to improve research, care, awareness and quality of life for patients with rare diseases worldwide.
To learn more about our organization, or donate to help us continue to bring help and useful resources about autoinflamamtory diseases at http://www.autoinflammatory.org. We need your support to meet these goals!
Please visit our informative blog at: http://saidsupport.org. Thank you.
This website was made possible, thanks to the dedication of many that worked on this project. A special thanks to Black Peacock SE that orchestrated the development and programming, based on the original comparative chart style and content created by Karen and Nathan Durrant.
The development of this Autoinflammatory Search database was funded through donations from the general public, and an unrestricted grant from Swedish Orphan Biovitrum AB (Sobi). The original comparative chart development was supported through public donations and unrestricted grant funding from Novartis Pharmaceuticals, Inc. Canada.
The Autoinflammatory Alliance has full ownership and copyrights for this website and all content.