Helpful websites

The Registry of Hereditary Auto-inflammatory Disorders Mutations
http://fmf.igh.cnrs.fr/ISSAID/infevers
The Diagnostic Score for Periodic Fever - Online diagnostic tool, resources, and flow chart for pediatricians to use.
https://www.printo.it/periodicfever/index.asp
Moderated online international patient and medical community, including communities for CAPS, TRAPS, FMF, and Behçets–a NORD and EURORDIS initiative. (The Autoinflammatory Alliance is a moderator for some of these communities.)
https://www.rareconnect.org
PRINTO information on pediatric rheumatologic diseases (including many autoinflammatory diseases).
http://www.printo.it/pediatric-rheumatology
The American College of Rheumatology site has a search for a rheumatologist feature and helpful disease information.
http://www.rheumatology.org
The International Society of Systemic Auto-Inflammatory Diseases
http://fmf.igh.cnrs.fr/ISSAID
The EUROFEVER Registry for Autoinflammatory Diseases
http://www.printo.it/eurofever/eurofever_registry.asp
La Unidad de Enfermedades Autoinflamatorias (disease information in Spanish): Enfermedades hereditarias
http://www.autoinflamatorias.com/pacientes/?page_id=391
The French Centre de Référence des Maladies Auto-inflammatoires
http://asso.orpha.net/CEREMAI/CEREMAI.html
Translational Autoinflammatory Disease Section at NIAMS at the NIH
http://www.niams.nih.gov/Research/Ongoing_Research/Branch_Lab/Pediatric_Translational_Research/tads.asp
The HUGO Gene Nomenclature Committee (HGNC)
http://www.genenames.org
Club Rheumatismes et Inflammation Image Library and other resources
http://www.cri-net.com/base_image/default.asp
Interactive Dermatology Atlas
http://www.dermatlas.net
The Childhood Arthritis and Rheumatology Research Alliance (CARRA)
https://www.carragroup.org
Sterol & Isoprenoid Research Consortium
http://rarediseasesnetwork.epi.usf.edu/stair
American Behçets Disease Association
http://www.behcets.com
National Organization for Rare Disorders has a helpful rare disease database
http://rarediseases.org
Rare Diseases Europe has a lot of information for patients at:
http://www.eurordis.org
Genetics Home Reference–a service of the U.S. National Library of Medicine
http://ghr.nlm.nih.gov
Walter Reed National Military Medical Center:Pediatric Rheumatology Division
http://www.wrnmmc.capmed.mil/Health%20Services/Medicine/Pediatrics/Childrens%20Subspecialty/Rheumatology/SitePages/Home.aspx
FMF Arthritis Vasculitis and Orphan disease Research in Paediatric Rheumatology (FAVOR)–a not for profit, NGO international research network.
http://www.favor.org.tr/paediatric-rheumatology
Single Hub and Access Point for Pediatric Rheumatology in Europe (SHARE Consortium). This link is to an abstract about this initiative. We have linked some of the SHARE articles to the corresponding diseases, and will add them as references as they become available.
http://www.ped-rheum.com/content/11/1/5
SaidSupport.org–The Autoinflammatory Alliance blog for discussing all things involving awareness, advocacy, care and thriving with SAID.
http://www.saidsupport.org
Our Autoinflammatory Alliance official website. More information, the PDF version of this chart, the CAPS medical guidebook, and other materials are on the site.
http://www.autoinflammatory.org
Genetics Testing Registry (GTR) - Search here for any genetic test that can be done at laboratories worldwide.
http://www.ncbi.nlm.nih.gov/gtr/
PubMed: The US National Library of Medicine, National Institutes of Health (NIH)
http://www.ncbi.nlm.nih.gov/pubmed
Dermatology Online Image Atlas - DermIS Dermatology Information System
http://www.dermis.net/dermisroot/en/home/index.htm
Autoinflammatie.nl–a website created by Dr Anna Simon, MD PhD and Dr Karin Mulders-Manders, MD from the Nijmegen Center for Immunodeficiency and Autoinflammation (NCIA)–Radboud Nijmegen Mniversity Medical Center, Nijmegen, The Netherlands.
http://www.autoinflammatie.nl/ENG/